Inside the Labyrinth: Osler's Web Updates

Dr. LUCINDA BATEMEN'S COMMENTS AT THE RECENT CFSAC MEETING AS HER TERM ENDS:

November 11, 2009

Tags: DR. BATEMEN'S CFASC TERM HAS ENDED; SHE SAYS GOOD-BYE TO THE COMMITTEE

Almost 20 years ago, when I finished my residency, the Infectious Disease fellows placed a message on the telephone saying, “If you are calling about Chronic Fatigue Syndrome, call Dr. Bateman at this number,” essentially diverting CFS patients away from the state funded university hospital to my new internal medicine practice.

It was a joke—payback--- for the intense interest I had expressed for CFS during my training, about the time the 1988 Holmes case definition was published. My interest was initially fueled by a personal desire to help my sister, who became ill while I was in medical school, but grew as I searched the medical literature, evaluated hundreds of patients, and came to know the illness face to face.

Nine years ago, after 10 years of CFS, my sister developed non-Hodgkins lymphoma. She died at age 51, overwhelmed by an unknown infection following stem cell transplant. Now WPI has reported the presence of XMRV, a discovery that could potentially have changed her fate. (more…)

RUBBER MEETS ROAD

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Response from the Centers for Disease Control to Osler’s Web upon its publication in 1996:

“…Tom Skinner, a spokesman for the CDC, said his agency has gotten numerous inquiries about the allegations raised in Ms. Johnson’s book but is neither investigating them nor commenting on them.

‘We have not reviewed her book, and will not comment on her book and are not going to,’ Skinner said.”

Dave Parks, Birmingham News, Birmingham, Alabama